Saturday, November 26, 2022

Outreaching to other group or community about CKD topic

Recently I had a dialysis-buddy Recently I have a younger dialysis-buddy + friend & she is also our leading hands in our dialysis centre up extreme North of Singapore. She began her solo-volunteer journey to outreach at Al Maarof Mosque during Family Day on Saturday 26th November 2022. I haven't managed read or follow or study her program yet but as a dialysis patient I trust & strongly believe it is very appropriate with right approach & right attitude to support our NKF Singapore National HealthCare project or program particularly about Kidney Disease's AWARENWSS subject or topic!

In fact I had been caring & sharing through my own personal & genuine experiential experiment + experience & exposure when I engaged with NKF Singapore through my own daily diary facebook pages for my own extended families + relatives & friends near or far known or unknown. For a deaf dialysis patient perhaps this is best suit my style to express & illustrate my inner voice - what's on my mind in today hi-tech advance of digital connectivity globalization village!? Because nowadays ever since this unpredictable unforeseen & unfortunate circumstances of Covid-19 Pandemic breaking out since early 2020 in Singapore, HEALHCARE topic is very transparent world-wide already!

Hopefully I get her permission & others too to spread & promote this new concept to other patients-buddies among our NKF Singapore as our 2nd home too. CHEERS & Singapore Boleh Lah + Majula Singapura!!! 

Tuesday, November 1, 2022

New Chapter New Challenge in 2022

 Today this very morning, November 2nd 2022, I finally have my desk laptop computer fixed up & I am able freely & comfortably to trace back check-up & reflect my past events or activities from now onwards. It is precisely & exactly my personal & genuine ageing journey despite with multiple illnesses inclusive heart surgery twice. I solely rely on this hi-tech connectivity due to unforeseen & unfortunate totally loss hearing sensual organ. As for normal daily communication & interaction I too need phone inclusive at home with my family members. Slowly & gradually I can adapt to the circumstances at ease nowadays! May I continue have DETERMINATION & CONFIDENCE to keep moving on despite invisible handicap!  

Saturday, September 3, 2022

Sick & Ageing Part 4...continue of Part 1, 2 & 3 earlier

 https://leongsengchen.blogspot.com/2022/09/sick-ageing-part-1-2-3.html?m=1#:~:text=Sick%20%26%20Ageing%20Part,Post%20a%20Comment

https://leongsengchen.blogspot.com/2022/09/sick-ageing-part-1-2-3.html?m=1#:~:text=Sick%20%26%20Ageing%20Part,Post%20a%20Comment


Thursday, September 1, 2022

Sick & Ageing Part 1 , 2 & 3

 Sick & Ageing (病态与老化)P(3)

So much for the expression in respect to the brief history & background of my “sickness & ageing journey” as per written in article part (1) & part (2) which is related to my personal genuine body-mind-game/system, I will continue hereby the bits & pieces as per my diary of routine format as I go along my daily living journey on earth as well. It is purely part & parcel of my state of sickness & my ageing journey that my extended families encourage me to boost up my confidence despite I am a deaf patient or person partly due to ageing as well as invisible illnesses.

Birth ageing sicknesses & death are normal process of life-journey for all humankind on earth nevertheless. It is a factual truth that no one can deny it/them at all! However, I will go-pass the birth & death subject or topic for the time being but I will continue touching & expressing on my existing present “sick & ageing” journey & like it or not this is what’s happening right now & here to me personally. It is the progressive process or state of phenomena that I have to face it I have to accept it & I have to manage it in appropriate or proper manner perhaps with sufficient tolerance & or wisdom as a basic form of life as well as as a basic human being on earth. What how when where & why do I have to deal with it with the given way or offering choice as per my own family toward my personal conditional factors it is simply I am within part & parcel of the process of my existing environmental journey too. I need to know I need to understand & I need to realize the consequence of the whole phenomena. That’s all matter the most essence for me to keep on living steadily happily with peace of mind for the rest of my life-journey in order not to add or give extra responsibility or burden to my family & the community as a whole!

To me everyday is a fresh & new chapter or day! Be pro-active & stay healthy for comfortable self-independent. I hope & wish I am practical enough for self-motivation self-cultivation & self-independent too during my ageing period of journey with multi-illnesses!

Basically I am on yearly review for all my multi diseases or illnesses except the renal disease which is term as End State Kidney Disease (ESKD ~ Kidney failure) for which I need to do haemodialysis (HD) treatment or therapy 3 times weekly for the rest of my life-span/journey. Therefore dialysis centre is considered as my 2nd home nowadays, nevertheless. As for my heart problem I need to go blood labs test in October this year once again for final review as a result of my latest minor surgery on my blockage on my heart blood vessel. The other one that’s inconvenient for me is my almost total loss of hearing sense even with powerful hearing aids on. The rest I feel it is okay & fine to keep moving on along my life-journey.

Therefore I am willingly to express with my shallow philosophical concept by humbly sharing what how when where & why & finally who am I or I am along a personal journey as a sick & ageing patient/person.

Here onward I like & want to express & voice out in my daily basis as a diary form in this face book pages as I go along for the rest of life-journey. This is surely inclusive my mind-set too as I progressively move on! In another words it is about my present existing body-mind-game/system/activities. Off & on I will also highlight in an additional note-form of them too such as for example like this written article if & when I am free with right mood as well.

Thank You & SMILE with CHEERS always ~~~

Thursday, May 5, 2022

NKF Singapore

 

1) NKF Singapore is my 2nd sweet home. Can't imagine how to move on without it at all.

 

2) Sadly & truly miss all the direct communication and interaction for friendly friendship + fun & joy for happiness.


3) Truly need to support each other for cohesive & warmer relationship + bondage. Together as a team we are stronger!

4) Volunteerism is broad topic beginning within family-community doorsteps for effectiveness & productivity.  

5) As group patients-volunteers an ordinary auxiliary power for our 2nd home NKF! 

 6) Self-care & independently. 

 





Friday, April 29, 2022

Can Singapore NKF’s kidney patients be as volunteers upon recoverable healthy-path too? - 新加坡 NKF 洗肾病人复原中可否发愿当义工呢? (Part I)

 https://www.facebook.com/notes/856062331888790

2017 年四月份(三十号)的最后一天了,你有何感想或回忆感?今天是我们东南亚一带美丽的星期天!当下早晨七点十五分太阳刚刚出来和大家见个礼了呀!感恩/谢谢又是一个美丽的一天!

末学浅薄心声或感想是:- 很多时候世间上所谓的布施,往往我们作义工团体们的惯性 - 即是眼前看到一个人表面上身心的一些缺点或普通需求或需要状态等等而当下发出可怜心或同情心而进行布施等等的因缘。末学在 NKF Singapore 两年内一目了然!即是那些在 NKF Singapore centre or clinic 里所谓的 PRO 不也是如此如是如实吗?至于PRO 如何操作当然末学还是不很明白或清楚。这里固然谈起有关自愿性义工课题嘛!并非有关正式的劳工或含有工作性单位或临时/暂时性的工作服务工作等等。但是是否也可以含有关联或关系性呢?这就看个人服务的条件 (personal productivity) 了!

其实我们必须要有多少世间智慧,看透或看穿一个人或一般人身心之不足(actual short-coming along one's life-journey)。我们 NKF Singapore 基本身为洗肾脏病人的发心/布施,当然很好很棒很珍贵的呀!然而切实很有限的因缘和观念之下进行的嘛!因为每个人病人身心和环境都有细细相关/关联和关系的嘛!我们必须限制于含有极效用和积极的义工工作行动环境中或范围里不断练习和成长,这样或这里或者乃是我们洗肾病人的凸出专长和经验的所在来应用(exceptional direct experience with actual application on daily living lives) 于我们日常生活中的点点滴滴呀!才不至于花费不必要的时空或时光里头。

世间义工意义(volunteers or volunteerism)含有很多种类,范围也相当或特别广大呀!那些体格健全的义工们(healthy & normal volunteers - in another word without kidney failure specifically mentioning here) 他们可以如常人一般人操作或布施各种各类的义工工作,比如推轮椅/替病人吃药洗澡/厨房工作/喂病人吃饭/陪看病/唱歌/跳舞/讲故事等等日常生活上的点滴和舞乐,这些如今到处都可以看到见到的了, 较方便较便宜请来的外劳服务工人也很平常做得到办得到。然而我们 NKF Singapore 病人假如身心能够不断在恢复过程中而慢慢渐渐健康起来后,身为自愿义工条件和关键
- 是否应用在于比较实际性的范围内或者比较有效能性适用上呢?尤其对healthcare matters or healthcare business 是其他同病相连的同伴也可以更明白更清楚复原点滴或方法呢? 才不至于给社会/政府很重的负担呢?如今我们NKF含有赵越大概4100洗肾新旧病人了,而且每一年还在不断增加中呢!我们洗肾复原的病人是否可以劲得起作为我们的第二个家园 - 即是国家 NKF 洗肾中心的辅助的服务所 (NKF’s auxiliary service) 或推动力量 (NKF’s auxiliary drive) 呢?还是和普通的一般健全的义工之类没有分别人云也云呢?末学至今认为或许这是我们今天 NKF Singapore 在于2017 年创新的新一页开始吧!思维中我想我们NKF或者已经起步了呀!最终宗旨即是实行积极含有关键性的课题了,比如 “beyond dialysis” philosophically in term of long run lifelong learning in educational culture & value!

这里借个机缘/因缘感恩 NKF Singapore's “giving life & hope” as goal or mission for us as NKF Singapore patients! 大家珍惜我们这个难得的第二个美丽的家园吧!祝愿大家团结起来共同再接再励加油更上数层楼吧!谢谢再再谢谢了!

Saturday, March 5, 2022

Kidney-Failure (ESKD) & Heart-Attack

Heart Attack - is one of my favourite subject or topic to touch & talk about in this 2022 New Year New Me & New Chapter as far as HealthCare educational culture and value along my present existing ageing journey especially nowadays I have multiple illnesses.

My first heart blood vessels surgery (initial symptom of angina) was carried our in 2009 while my kidneys completely collapsed (ESKD) in 2014 that was the year I began to engage with dialysis treatment or therapy.
The 2nd heart blood vessels surgery again some time in 2019 for which this is precisely the written illustration article right here & now. The first & 2nd heart attack is a gap of appropriately 10 years apart. In other words in between 2009 & 2018 I had my kidney completely collapsed in 2014 the 22nd of October.
What how when where & why kidney & heart are interrelated to each other as far as HealthCare industries services or business are concerned!? To those who are ageing with multiple illnesses, it takes GREAT STRENGTH to live a LIFE on a MACHINE!!! This is precisely my experiential experiment + experience & exposure today! Therefore as a patient of both heart & kidney problem naturally I incline to be mindful with my them as far as HLEATHCARE is concerned in order to keep moving on in daily living lifestyle or life-journey on earth.For heart attack there are several stages ways or paths of precautions & or measurements to be carried out in order to safe guard the very serious heart attack such as heart seizure or heart arrested & die on the spot. Other cases may be minor under healthcare rehabilitation for recovery. So generally heart disease is serious & critical than kidney failure. Kidney failure is NOT the end of the world or lifestyle or life-journey on earth as far as medical field is concerned. This where I had been in this situation at the moment relying on to dialysis machine since 2014 in addition to other conditional factors such as medications, balance of diets or control of diets, regular exercise, regular blood labs testing result or regular medical check-up, sufficient rest & sleep, family + relatives + community concern & support, & finally the positive approach & attitude toward lifestyle or life-journey.
Today I even are busy during my normal usual routine standard 4 hours of haemodialysis (HD) treatment or therapy in order to mindfully with alertness to monitor & observe my constant blood pressure fluctuations in addition to heart pulse. 🦶💪🙏✍️🥳

Heart- Attack

Heart Attack - is one of my favourite subject or topic to touch & talk about in this 2022 New Year New Me & New Chapter as far as HealthCare educational culture and value along my present existing ageing journey especially nowadays I have multiple illnesses.

My first heart blood vessels surgery (initial symptom of angina) was carried our in 2009 while my kidneys completely collapsed (ESKD) in 2014 that was the year I began to engage with dialysis treatment or therapy.
The 2nd heart blood vessels surgery again some time in 2019 for which this is precisely the written illustration article right here & now. The first & 2nd heart attack is a gap of appropriately 10 years apart. In other words in between 2009 & 2018 I had my kidney completely collapsed in 2014 the 22nd of October.
What how when where & why kidney & heart are interrelated to each other as far as HealthCare industries services or business are concerned!? To those who are ageing with multiple illnesses, it takes GREAT STRENGTH to live a LIFE on a MACHINE!!! This is precisely my experiential experiment + experience & exposure today! Therefore as a patient of both heart & kidney problem naturally I incline to be mindful with my them as far as HLEATHCARE is concerned in order to keep moving on in daily living lifestyle or life-journey on earth.
For heart attack there are several stages ways or paths of precautions & or measurements to be carried out in order to safe guard the very serious heart attack such as heart seizure or heart arrested & die on the spot. Other cases may be minor under healthcare rehabilitation for recovery. So generally heart disease is serious & critical than kidney failure. Kidney failure is NOT the end of the world or lifestyle or life-journey on earth as far as medical field is concerned. This where I had been in this situation at the moment relying on to dialysis machine since 2014 in addition to other conditional factors such as medications, balance of diets or control of diets, regular exercise, regular blood labs testing result or regular medical check-up, sufficient rest & sleep, family + relatives + community concern & support, & finally the positive approach & attitude toward lifestyle or life-journey.
Today I even are busy during my normal usual routine standard 4 hours of haemodialysis (HD) treatment or therapy in order to mindfully with alertness to monitor & observe my constant blood pressure fluctuations in addition to heart pulse. 🦶💪🙏✍️🥳

Wednesday, March 2, 2022

HealthCare + Ageing Journey With Multiple Illnesses (Part 2)

Today I manage to trace & explore my previous written articles about HealthCare & Ageing With Multiple Illnesses Since Once Upon A Time!

Down below is one of my many written articles that I am lucky to be able to find & extract from online connectivity through one of my relatives FB pages.
@**************************************************************@
This article down below was written sometime ago. So this year 2022, I am going to seriously reorganize once again about my lifestyle or life-journey as HealthCare + Ageing Journey!
Ageing + multiple Illnesses Revision ~ (2)
Sick & Ageing (病态与老化)P(2) Written sometime in December 2018 as I recall.
This part (2) is true about my present existing conditional state as per my HEALTHCARE + AGEING JOURNEY WITH MULTIPLE ILLNESSES phenomena of my personal genuine body-mind-game/system.
However, I have slightly modified with some adjustment here & there too in order to keep up-to-date as I refresh my mind-heart & move on in this year 2022.
Temporary this is considered to be PART 2 about my personal genuine of 【HEALTHCARE + AGEING JOURNEY WITH MULTIPLE ILLNESSES 】though it mixes with some my historical journey within the family.
~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
Sometime in late 1991 & early 1992 my family decided to migrate to Singapore for the sake changing environment as well as for the future of our growing up children study & career. Singapore is fact my wife’s birth place as we met each other in Melbourne of Australia in 1968 while we were studying. That was a big step of change in our family as Singapore is modern city & we were not sure how we as a family can adapt well with the pace of lifestyle.
Earlier at part (1) of this written revision article I spoke briefly touched my first very serious sickness as a result of gradual hearing loss as well as my jobless status. I could only manage to occupy myself by doing some volunteering tasks in Singapore. I was engaging as solo-volunteer with CDC dealing Renci mobile home nursing for elderly & sick patients as well as Metta home nearby my residential at Woodlands area with my Woodlands friends. Later on, a group of our neighbours teamed up & shared to form Share-On Welfare Organization dealing with food distribution for the needy & poor residents in Woodlands area. It is still in operation nowadays but I have since less involvement because of my kidney failure since 2014.
I believe I began to have high blood pressure sometime just before my 60 or 61 years old of ageing journey through visiting renal doctor at Singapore General Hospital (SGH). My kidneys began to have problem. Blood labs test always contained trace of protein leakage + trace of blood too. Something like in 2007, if I can recall correctly, & or, if not mistaken. I was merely given medicines to control my kidney problem. My family & I had no medical knowledge nor understand what to do then. We had not seen any dietitian too for advising etc for diet control etc. So I used to visit 2 specialists in SGH, ear specialist & renal specialist for my 2 kinds of sickness or disease though I still have my uric acid high with occasional gout flare or attack since young age.
Then in 2009 after my wife & I came back from KL’s adventure while living in our 2nd son family house. I had my angioplasty balloon on restriction or blockage in heart blood vessel. I had been admitting to Singapore General Hospital (SGH) for several times under A & E till the last time an experienced heart specialist Dr Lim confirmed that I had angina symptom ( a kind of pre heart-attack symptom or phenomena) about heart problem due to chest-pain usually happening at evening after dinner usually with vomiting symptom as well. Merely through one of morning round conversation at SGH Dr Lim said he would see me in laboratory (operation room) next morning. So that was 10 years ago from my 2nd heart blood vessel surgery (also through angioplasty balloon) in 2019 which was the most recent one. By then I need to carefully watch out my heart problem + renal problem + ears problem & of course my uric acid too due to frequent gout flare or attack. These were the three items basically for my health problem since then.
Brief summary of diseases:-
1) Injury due to heavy impact of car accident collision resulting nerves system deterioration around my both ears hearing organs year after year gradually. Meaning both of ears hearing senses loss. Recent years couldn't help to use hearing aids anymore! No medication needed!
2) Anxiety with DEPRESSION. No more medication!
3) HEART BLOOD VESSEL PROBLEM with heart blood vessel surgery in 2009 & 2019 respectively. Under medication!
4) Stomach Ulcer. Under medication!
5) Prostate problem (with high level reading of PSA). Under medication!
6) Renal disease (ESRD). Haemodialysis (HD) treatment or therapy three (3) times on weekly basis plus medication!
7) Gallbladder stone surgery. Been removed!
😎 Symptom of initial Pancreas problem. Under bi-yearly specialist review! No medication!
9) Uric acid + Gout Flare or Attack ~ Knees joints weak & problem + hips joints weak & problem. On medication!
10) The latest one is my right hand side elbow surgery due to fingers triggering problem about 7 months ago last year 2021! Under Vitamin 12 medicine.
Therefore at 74, generally I am on ageing period nowadays with multiple illnesses today! Everything seem to go slow that I must face the facts & accept my present existing body-mind-game/system of conditional factors. Must readily manage as according to the scientific medical field too.
But I think speak & do in this article as according to my memory with some reflection & reference on my medical brief records in my medical file anyhow. The much more details of medical data must go back & through Singapore General Hospital (SGH) as they are keeping all my personal medical reports/records in complete manner!
I trust & believe just before approaching year 2009 for which year I carried out my angioplasty balloon on my heart vessel blockage when I was about to touch my 60 years old age then I began feeling & encountering some of my physical body problems ~ arising one by another gradually year by year.
Though while adult period I had high uric acid with gout flare & attack occasionally but it was still not too bad at all.
From then onward I have stomach ulcer, prostate problem, symptom of renal earlier disease which is called as chronic kidney disease (CKD), gallbladder stone problem. Yes, knee joints problem was my most earliest problem probably due to frequent dislocation of joints while young playing indoors & outdoors sporting games. One reason is my uric acid used to be high perhaps that was one of the main reason arising to my high level of creatinine particularly during entering my 60 years old of ageing period as I slow down in many forms of healthy activities. That was around 2006 or 2007 just before my blockage of my heart blood vessel surgery done in 2009 partly might be due to my lack of exercise & poor diet control too. This is what I can roughly & briefly remember now. The actual details must refer back to my medical records both in my personal file as well as SGH official medical records.
By the way my 2nd angioplasty balloon on my heart blood vessel blockage was just this year 2019 in May due to 2 months plus typical of chest pain again which was considered as a kind of heart-attack too as per heart specialist advice. That 2 or 3 months (March to May) repeating to & fro about 4 or 5 times admission to hospitals was my worst journey of suffering with chest pain!
Recently within these 2 years as I had been touching my 70+ ageing period I seem to have weak hips joints too. After walking for few bus stops I tended to feel sore & a little pain on my both hips joints area. I thus must frequently rest for a while in between the journey before moving on again. This is why I cannot do jogging or jumping event or activity nowadays. I was told & thus should managed to reduce my dry weight during my haemodialysis (HD) treatment or therapy to existing standard ideal of 61 kg in order to lighten my overall pre weight partly not to over burden my both legs. With 7 years+ of my HD my dry weight maintain between minimum of 59.5 kg & a maximum of 66.5 kg. At the moment my setting dry weight is 64.8 kg. The adjustment will depend a few conditional factors of my body-mind-game/system too. Basically such as BPs in each session of my HD + BPs during dialysis & none dialysis days + my body composite measurement (BCM) + exercise + balance of diet & fluid + lifestyle or life-journey such as approach & attitude toward life & of course must be sufficient rest or sleep too.
I had my AV Graft surgery standby for ready my haemodialysis (HD) treatment or therapy as my level of creatinine had reached to very high level around 600 to 700 UMOL/L of reading in July 2014. By October 2014 when I was admitted to hospital for gout flare & attack my creatinine reading shot up to around 1000+ level. I was immediately sent for haemodialysis treatment or therapy at Singapore General Hospital (SGH). That was on 22nd October 2014. I was ready to face it accept it & manage it too but unfortunately I wasn’t ready enough what how when where & why to handle the haemodialysis (HD) procedures or its progressive work in progress healthcare schedule or arrangement. In other words my family & I were truly lack of basic knowledge on dialysis treatment or therapy subject or topic. Unlike these latest few years the Ministry Of Health in Singapore had launched fighting for high blood pressure & diabetes diseases! That was only just a few years back then! Singapore government finally was very serious enough to educate its mass population about renal diseases under chronic kidney or renal disease (CKD) topic. Never mind it is better late than NEVER approach or attitude for the mass population education culture & value! I am very impressed today NKF Singapore already beginning working closely hands & hands with MOH & MOE + Ministry of Family-Affairs too! I can see through my own observation while attending many events or activities since 2017. The most impressive that is cutting travelling time & space is the patients are now able to carry out their HD nearest to their respective residential area. This is truly an extra bonus for dialysis patients & caregivers too!
After one year engaging with NKF Singapore I adapted to have some experiences & exposures through personal trials & errors of own experiential experiment methods. In particular about my personal bi-monthly blood labs test results issued by NKF that alerting me about my personal medical category values or biochemistry data which is directly related to my medications & diet control + exercise + enough rest & sleep. This AWARENESS is so essential basic educational culture & value for dialysis patients proper & faster recovery path!!! From there onward, I gradually bounced back once again with positive approach & proper attitude about my personal lifestyle & or life-journey. That was around early 2016 that I was impressed by attending our NKF HQ regular events & activities under PA&R department. My personal involvement clearly shown & illustrated in many photos & pictures as well as my pages of description in my personal FB. I began proactive once again & remain engagement with NKF’s frequent events & activities too. That actually had made a great difference in my lifestyle as well as my overall life-journey too as I became more self-independent too despite my invisible deafness disease or illness as a handicap dialysis patient in term of poor or weak direct communication & interaction.
I began my HD at NKF Yishun DC1 at blk 203 on 1-3-5 noon shift beginning on 20th March 2015. By end year of 2015 I was luckily issued my detail of my personal blood labs test results probably due to change of nursing management. We only had 13 patients of slots at one shift & it had been established for more than 20 years of history in Yishun area & it was the first NKF’s DC in Yishun in fact. Today we have another 2 new DCs Yishun 2 & 3 lately in operation within these 2 or 3 years. My last engagement with Yishun DC1 was on 14th May 2018.
So, I was lucky enough being transferred to now Jo & Gerry Essery - NKF Marsiling DC which is nearest to my residential home ground on 16th May 2018. Marsiling DC is a new centre which can accommodate 22 patients at one time of shift’s roaster. We have around 22+- nurses all in all inclusive office administration + cleaners. Technical back-up crews off & on come & go & so are some NKF staffs as back-up system. Since I began at Marsiling DC with new management + new facilities & practically fresh nurses too, I began to plan my haemodialysis (HD) strategy as according to my family & myself schedule. This is the reason why I keep them on my face-book pages about my instant progressive procedure or program with photos taken too during my haemodialysis (HD) treatment or therapy so that they can keep track on my progressive schedule as today younger generation are too busy enough with their own families involvement or engagement. By following my description of my best knowing & understanding in my personal genuine HD treatment or therapy they have ease of mind for their own family involvement or engagement. If heavy raining or something crop-up they will make arrangement of transport for me to & fro too. They seem to have rest in peace of mind with my self-independent to certain extent, nevertheless. I also like & want to care & share & contribute with those relatives & closer friends, near or far, with my personal genuine but shallow experiential experiment or experiences/exposures.
I am not a well trained patient but I am willing to learn & pick up if there is golden opportunity for educational culture & value as I need to depend dialysis treatment or therapy for the rest of my long term journey. How about those younger & well educated patients? Aren’t they having much longer journey than we as older patients today? The KEY is RECOVERY PATH! And bounce back strongly & effectively in normal lifestyle & enjoy the lifestyle or life-journey! We have launched the concept of BEYOND DIALYSIS educational culture & values in recent years which are for potential chronic renal disease population. But HOW about PATIENTS EDUCATIONAL CULTURE & VALUES for better path of recovery & bounce back once again for keeping pro-active & stay healthy once again? Isn’t it a truly meaningful lifestyle or life-journey for those approaching 50 or 60 or 70 ageing period of patients? Younger generation of patients surely is a MUST for educational culture & value purpose!
Because we have good Artificial Kidney (AK) machine where I can view the monitor or screen to self-learn & pick-up bits & pieces here & there during my dialysis progressive procedure/process. Particularly something to do with the response of my own personal genuine body-mind-game/system during the solid 4 standard hours of HD procedure/process. I am trying to be mindful & alert what how when where & why my body-mind response in such a way whether favourable or none favourable conditional factors even without official training as I am a deaf patient after all. I feel I am the driver driving a car with those artificial kidney or AK machine today! Perhaps the only difference is the needling schedule + machine setting in technical aspects of stories.
My feeling is in addition of the fresh environment with easy convenient & cost effective of travelling distance + effort in term of time/space, NKF managing well enough to have systematically arrangement for branches level of exercise group since then as well plus the art classes too. I am always very happy we have dietitians frequent visits at our branch too despite our late in operation as compared to others. Generally I had been quite satisfied & happy enough with Yishun DC1 & present Marsiling DC too! Smile & cheers for NKF Singapore as our 2nd home which is “another sweet home away from our sweet home”!
Apart form DC weekly exercise last year 2021 & this New Year 2022 I had learned & picked up Gym Tonic Exercise & Modern Way of Artistic Illustration in pencil drawing. They all are excellent THERAPY for me! Thank you!😜feeling blessed with Chen Leong and
4 others
.
Like
Comment

Tuesday, March 1, 2022

HealthCare + Ageing Journey with Multiple Illnesses (Part 1) ~ 27th Feb. 2022

 HEALTHCARE + AGEING JOURNEY WITH MULTIPLE ILLNESSES (Part 1) ~ 2022 FEB 27TH

Lifestyle or life-journey since birth as kids & young adult through many stages of progressively growth & development until today at my the ageing period is all about HAPPINESS! It is regardless whether one is healthy or weak & sick + ageing with multiple illnesses on our earthly journey!
As at today 27/02/22, I am a 74 retiree. I am making a FRESH revision about my personal & genuine HEALTHCARE as according my memory-lane as per my online face book pages in addition of my personal & genuine medical records in my filing system! I started my heart blood vessel disease through angioplasty balloon surgery sometime in 2009 ~ sort of minor heart attack symptom as according to heart specialists from Singapore National Heart Centre. This was for my first most serious physical or body disease of my whole life-journey. I was 61 then. Then, by 2014 when I was around 66 or 67, I got my both native kidney failure (ESKD). As a result, I had to start haemodialysis (HD) treatment or therapy since 22nd October 2014 as recommended. I was very lucky enough to prepare 3 months earlier by doing an AV Graft surgery at my left hand upper arm. That was sometime in July 2014. My 2nd chest pain with heart blood vessel surgery was on 2019.
Prior to these occasions or incidents mentioned above, I had gradually lost my hearing sense due to side effect of a serious car accident. That was a very heavy impact collision accident in fact. At once stage, I was unfortunately fallen into anxiety with deep depression for quite a while along my life-journey indeed. No medical treatment could possibly cure me either through Western & Chinese treatment + therapy, & or, medications etc till I happened engaging with several retreats about the topic of Mindfulness Meditation + Stress Management before my whole family migrating to Singapore! Finally, I got over the depression without anymore medication & or treatment/therapy whatsoever & hence bounced back strongly once again. But by then I gradually lost my hearing sense of capability as the time going by year after year due to nerves side effect around my ears organs. I had lost my jobs for family earning income for many years as my children were still young then. The whole burden unfortunately fell onto my wife shoulders in order to keep the family moving on. Today I am totally deaf haemodialysis (HD) patient since hearing aids cannot possibly help me much anymore despite many ways of trials & errors methods. My family & myself eventually decided to give up the idea.
Still I manage fair enough to have positive approach with appropriate attitude toward my lifestyle or life-journey ever since taking part the retreats of Mindfulness Meditation with opening heart-mind too! I am always readily able to face the reality of my lifestyle or life-journey by daily basis. Therefore, I have learned to face it to accept it & to manage it readily & satisfactory too in due course to keep on by moving on my personal life-journey despite ageing period with multiple illnesses. I also able to manage it what how when where & why they are coming along as per my body-mind-game/system as according to scientific medical field at Singapore hospital under MOH advices or recommendation. One thing for sure I have determination to keep on moving on & on & that's life in my diary or as a notebook too! Thank you Singapore as my wife birth place originally too! We met each other while studying in oversea.
My philosophy is simply yesterday ( + the past) is gone & cannot be reversed while tomorrow ( + the future) is yet to come & it is full of unpredictable promises or phenomena too. And what is more, even right NOW & HERE, it is also TICKING away in no time at all!!! This is IT precisely presently my approach & attitude about my lifestyle or life-journey!!! However, I am not idling nevertheless as I am still keep learning & picking fresh things here & there till my last breathe on this earth-journey! CHEERS~~~Emoji
My best bet quote in my present existing life-journey is simply ~ Life is just a journey, nothing else!!! I prefer to use Chinese culture & value to express as such:- 一期生命人生人性道路上生、老、病、死,只是曾經和過程的【里程碑】而已罷了! My most inspiring book that I had ever feeling touching & valuable is *Life & death* in Chinese version it is called 【生死書】! In addition the movie I enjoyed most is the old movie called The Sound Of Music! Music is actually one my best-bet therapy in my lifestyle or life-journey too since young! Today I can't do anymore with music therapy yet I still like & fond of singing though. Anyway I have gradually switched to Art & Science of Chinese traditional brushes drawing/painting & modern way of Artistic drawing that I picked up lately.
As a dialysis patient with multiple illnesses I am quite conscious about my meals & drink on daily basis. I must eat wisely with 70% to 75% full stomach only with balance of diet as per according to the dieticians' advice or recommendation too. I am limited to around 800 to 1000 ml fluid per day with regular or constant daily activity or exercise. My favourite recipe is a combination mixture vegetables cooking mild-curry as best bet dish. I can prepare myself too but the curry powder must be readily available normally my wife will arrange it. Plus home cook of steam chicken that my wife uses to do at home! But at same time, others food I use to take too but as according to my regular bi-monthly blood labs result with less oil less sugar & of course less salt, nevertheless. At the moment my wife does all home cooking & occasionally we buy from hawker centre too. Basically my wife & I live under one roof & she is my overall sole home or family caregiver too while the children busy with their respective family but they strongly & warmly concern & support both of us anytime anywhere in Singapore, nevertheless! Only when visiting specialists at SGH they will accompany me because I am hearing impaired patient in addition to our regular family gathering!
As a long retiree since I lost my hearing sense, I am on noon shift session since day 1 of my engagement with HD in 2014. Always showering/cleaning properly & eating up to 75% of of my stomach before getting a public transport to go to dialysis centre independently. At centre I use to help a little bit within my personal limitation too to one my hubby who is happening to be visually impaired. He is sitting next to me since I am also a hearing impaired dialysis patient. Though we are like "chicken & duck" in term of mutually communication & interaction we seemed to be able to click & support each other well enough by complementary flow rate. However, it is only confined to the centre when were together anyhow.
I also began to prepare as according our dialysis centre on self-training program introduction by Marsiling DC on personal self-care & acting independently before the nurses available attending the normal or routine needling schedule. I use to record with sufficient understanding & awareness on my artificial kidney's performance from beginning to the ending on each my individual HD session. Together I also mindful my next two patients beside me! In addition, I always keep alert & mindful about my blood flow through my life-line AV Graft conditional factors in addition to keep regular exercise if necessary + observing my surrounding activities too. I always trying my best to keep myself busy enough, anyhow & or nevertheless!
As a hearing impaired dialysis patient, whenever the nurses or caregivers attending whole-heartily with gentle & valuable in handling services & in return I would never ever miss to appreciate with A SWEET THANK YOU mutually in every action or behaviour! There seem to be an automatically attraction such like a magnetic field right in my body-mind-game/system on the spot from time to time or case to case basis. This is the warmest feeling from our mutually heart-mind as basic humankind nature!!!
This New Year 2022, I plan to learn & pick up the Modern Artistic Topic with opening heart-mind & also with combination my normal ordinary lifestyle or life-journey into a note book as per ART & SCIENCE combination formula! Because everyday I write my diary as note book too in my personal face book pages. Simply as deaf patient this is my world after all & the only way & or only path too! I also connect & or bridge friendly friendship + relationship & bondage from all over the world friends, near or far, known or unknown too, through both my WhatsApp line & FB pages. Truly busy enough everyday for me!!! Thanks for the advance hi-tech connectivity these days. Thanks so much for my family many happy returns too. I am very satisfied with happiness along my ageing journey even though I am with multiple illnesses nowadays.
Since I began with Marsiling DC sometime in May 2018 after transferring from Yishun DC1, I had been very active with Chinese Art class drawing with Chinese brushes in addition to regular DC group exercise on weekly basis. Last year despite the Covid-19 I joined a team to pick up Gymnastic Tonic Exercise at NKF's Jurong IRC site! This is in order to keep my ageing muscles stronger & fitter too.
I am fond making friends both online & face to face too depending upon the circumstances too. Among friendship & bondage, I like to be friendly be honestly & be patiently by listening/setting an example to get TRUST as first STEP of any journey!
As a dialysis patient I have never missed a single routine HD session at all in addition balance of diet, medications, regular exercise, following for regular medical check-up, mindfulness or awareness personal regular bi-monthly blood labs testing results, sufficient rest & sleep, family + relatives + friends + community concern & support. Of course individual basic positive approach & attitude toward lifestyle or life-journey. Almost every week I will express my feeling through Facebook for my each session of haemodialysis treatment or therapy! Also everyday I will review my past events in order to reflect my planning on face book pages as my daily diary too because as far healthcare is concerned I am very transparent patient since day 1. This is partly as my habitual instinct of CARING SHARING & CONTRIBUTION what how when where & why I have learned or picked up or known about along my life-experiential experiment + experience through personal genuine exposure simply I feel I am still lack of educational culture of familiarization & training as far as dialysis topic is concerned.
Throughout my 7 years plus of my HD period, I had travelled to home town or birth place few times + visiting Batam island & cruising to Penang island in West Malaysia through the beautiful Straits of Malacca!
My main philosophy nowadays is simply:- add LIFE in YEARS to come along my ageing with multiple illnesses lifestyle or life-journey!
Thank you! — feeling blessed with Chen Leong and Sharon Leong.
Like
Comment